Archive for July, 2010

C.W.

As I have not submitted to a spinal tap, I do not have absolute diagnosis that my condition is MS, but all arrows point to it. My daughter was positively diagnosed with it, which increases my chances of having it exponentially. A spinal tap laid my daughter up for 2-3 months; it would do the same to me, I’m certain.

When my daughter was positively diagnosed with MS, we talked at length about her symptoms and mine. I had some tests run; all arrows pointed to MS but without the spinal tap it’s still not 100%. But the symptoms are there; mainly the devastating weakness that I’ve had for years, that finally reduced to tiredness (plus numbness, occasional lack of balance, etc.).

The emotional stress hit me so hard after some problems I had, I could hardly think. It became very difficult to just get work done in our office (which is in our home). I was not getting better. Piles of work on my desk were getting higher; I could get some work done, but anything that required thinking was too hard for me.

Then my daughter introduced me to the Klenner Program. Since then I’ve told anybody who would listen about the Klenner Program.

With my very first B1 shot my body felt like it was getting what it had been starving for all its life. I felt such a sense of well being. To me, it is well worth the shot daily to get the benefits.
After 3 weeks on the Klenner Program I could begin to THINK again! After six weeks on it I was able to rearrange parts of the house. I find I am getting more and more done, the longer I’m on it; I’m getting my life back! At 58 I feel without the Klenner Program, my husband, would have to take care of me in another few years. I was getting to the point where I just couldn’t think very well. It felt like I worked all day yet I was getting so little done. (We work from home.)

After almost 4 months on the Klenner Program I had the ability to do my own shots. Before that I just couldn’t confront it, but my husband went out of town for 5 days and I could either eat up 1-2 hours of my day by going to my doctor’s office daily, plus the expense, or bite the bullet, and I was very pleased that I was able to do them myself. The first 3 were the hardest. After that it got easier, and after about 7 it really got easier. It still hurts less to get them in the rump, so my husband does them most days, but he’s a night owl and on days he’s sleeping very late, I just do my own. I inject into the stomach. It’s not as bad as it sounds. Again, it is still worth it to get the gains. I’d rather have a few sore spots than not be able to think and let’s face it, not really have much of a life left. This is giving me my life back!

Also, on the first day I did my own shot, I remember later feeling strong for a little while. Not just an absence of weakness or tiredness, but I felt STRONG. It was such a wonderful feeling! And I felt that again a couple of days later.
I still have to really make sure I don’t push myself when I’m tired; when tired I have to rest. But I am able to do more and more, and it’s very exciting to be getting my life back at the age of 58 instead of feeling it will be over in a few short years, and that my dear husband will wind up taking care of me, because at the rate I was going, I’m sure that in another couple of years or perhaps much sooner, that I would put something on the stove and then utterly forget about it. Such lack of memory is actually dangerous. But I don’t need to fear it now. I am recovering. I am so grateful for The Klenner Program! My daughter urged me to start it for months before i finally did. I was afraid of the shot and didn’t really understand that this program is exactly what I needed to get my health back! I’ve spent a LOT of money over a LOT of years on nutritionists, who all helped me to some degree, but nothing else compares to Klenner!

I’m so grateful to my daughter for continuing to tell me I should get onto it, until I finally took her advice. Man, what was I waiting for? But you know, when you can’t think straight, you need more guidance and help, and that’s just what she gave me. You are welcome to put my wins on the site. I hope this is helpful to others who are on the fence about whether to start it or not. It is so worth it. I have to compare really watching my life slowly end, or getting back my energy, my vitality, the ability to do more and more as the days and weeks go by, instead of less! The years longer that I will be able to enjoy my daughter and my grandchildren. My daughter told me that she was afraid that soon I wouldn’t recognize her; even I hadn’t realized I was that bad. The better I get, the more I realize just how bad off I was. At this point my future is very bright!

I am very grateful to Dr. Klenner, to Dale Humphreys and Carrie Dujela and to Homer and to all who are responsible for sharing this wonderful program. It is saving my life. How can I adequately thank you? I don’t think I can. So if my success helps others, then I am happy. I want others to get their lives back, too.

Gratefully,

C.W.

CCSVI: One month after

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I did a blood test which came out very good. I am stopping the anticoagulant “Innohep” injection and starting anti-thrombotic Salospir (100mg) for three months. This is a low dose aspirin.
Improvements are the same with ups and downs, sometimes more stiffness and a feeling of heavy foot, sometimes less.

Very deep and relaxing sleep continues, so half of the day is very good but there is a “fall” in te afternoon. Niacin “works” much better compared to the past (the redness reaches from head to the lower parts of the foot). I stopped getting up to go to the bathroom during the night or very early in the morning.

I think changing key elements of the treatment of the protocol (such as Vitamin D, E, along with some like Curcumin, etc.) that I had to stop because of the anticoagulants had gradually a negative impact (eg in bowel function that affects everything and moving ) but seems to be temporary. From now on, I add besides Salospir:
# Vitamin E – no more than 400IU and always in natural form – D-Alpha-Tocopheryl (to such low dose of Aspirin adding Vitamin E would not be a problem but you should consult your doctor or even stop in case you notice any bleeding)

Vitamin D 2000IU as Colecalsiferol (there are some evidence that Vitamin D plays a role in helping the blood to clot while some others say that it helps with blood clotting to legs to patients with cancer- at any case I think 2000IU is a safe and low dose while taking Salospir)

Calcium 500mg as Citrate.

No Fish Oil yet with the aspirin.

Don’t jump into conclusions because as I have said before the liberation treatment doesn’t mean direct cure for MS. The damage done to the CNS takes time to get fixed. The important thing is that a great discovery has been made and gives you the opportunity to remove a very serious cause that directly impacts you MS symptoms which in the future (sooner or later) will play a role to your therapy…Most of all, safely and with no drugs!

Έκανα εξετάσεις αίματος οι οποίες βγήκαν πολύ καλές. Σταματάω τα αντιπηκτικά και ξεκινάω αντιθρομβωτικό Salospir για τρεις μήνες.
Οι βελτιώσεις εξακολουθούν να ισχύουν. Υπάρχουν σκαμπανεβάσματα στην κίνηση, άλλοτε περισσότερη δυσκαμψία και αίσθημα βάρους, άλλοτε λιγότερη.

Ο πολύ βαθύς και ξεκούραστος ύπνος συνεχίζεται με αποτέλεσμα το πρωί ως και το απογευματάκι να είμαι πολύ καλά. Μετά “πέφτω” και το βράδυ συνήθως πάλι πολύ καλά. Η λήψης Νιασίνης “δουλεύει” πολύ καλύτερα απ’ότι στο παρελθόν (το κοκκίνισμα φθάνει από το κεφάλι εώς χαμηλά τα πόδια ενώ παλιότερα έφθανε ώς τον κορμό). Έχω σταματήσει να σηκώνομαι για τουαλέτα κατά τη διάρκεια της νύχτας ή πολύ νωρίς το πρωί.

Εκτιμώ πως αλλάζοντας σημαντικά στοιχεία από τη θεραπεία του πρωτοκόλλου (όπως Βιταμίνη D, E μαζί με κάποια που έπαιρνα παράλληλα όπως Curcumin κλπ) λόγω των αντιπηκτικών, ότι είχε αρνητική επίπτωση σε ένα βάθος χρόνου (πχ στη λειτουργία του εντέρου που επηρεάζει πάντα και την κίνηση) όμως φαίνεται να είναι προσωρινό. Από δω και στο εξής προσθέτω με όσα είχα πει παραπάνω συν το Salospir: Βιταμίνη Ε – όχι παραπάνω από 400IU και πάντα σε φυσική μορφή – D-Alpha-Tocopheryl, Βιταμίνη D 2000IU σε μορφή Colecalsiferol, Ασβέστιο μέχρι 500mg σε μορφή Citrate. Όχι ακόμα Fish Oil.

CCSVI: Two Weeks after

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* 1 week after: Very deep sleep. It seems I need to sleep early at nights AND noons. Improvements in mobility have been confirmed from my wife during a trip. Faster and steadier mobility, walking without bending.

* 2 weeks after: Still deep sleep. No dizziness after swimming. Very good balance with closed eyes something I notice while I am on the shower. There are ups and downs but they do not reverse the general image.

Other things I notice without being sure if they are related to CCSVI: No signs of allergies (I had a few this time of the year which I controlled by increasing Vitamin C). Falling to my knees easier and getting up from this position. Swimming and exercising easier (stretching etc).
Despite the improvements there is still difficulty in mobility due to stiffness/heavy feeling and mild numbness. Usually feeling worse after noons.

What do I take while I am on blood thinners:
Vitamin C: 5 grams daily
Beta Carotene: 25000IU daily
Magnesium: 500mg daily
Β100: 1 daily
Pantothenic Acid 500mg daily

Probiotics
Selenium 400mcg daily
Niacin 150mg 3 times weekly to prevent blood clots
MSM(organic sulfur) 3000mg daily

Β1 – Thiamine: 400mg – 600mg daily separated in two different times of the day
Liver Extract: 1ml once weekly because it contains Vitamin K which helps the blood coagulate.
Injection Β12 from time to time

To see more about Vitamins look here:
http://www.mymultiplesclerosis.gr/index.php/suggestion_vits

To detoxify from iron I drink several types of organic Green Tea (there is a pharmaceutical form which is decaffeinated which is better). Make sure you brew it because Green tea leaves are also high in Vitamin K when they are raw. Also be careful of my nutrition to avoid eating Green leafy vegetables while I am on blood thinner (at least not eating every day and in big quantities).

Remember Vitamin E, Fish Oil, Vitamin D, Calcium should be avoided while you are on blood thinners because they also thin the blood. At any case consult your doctor. Maybe the type of anti-coagulant you take is mild and you can have 400iu of Vitamin E at the same time.

1 εβδομάδα μετά:Πολύ βαθύς ύπνος που αισθάνομαι να έχω ανάγκη ακόμα και τα μεσημέρια. Η βελτίωση στην κινητικότητα επιβεβαιώθηκε σε ταξίδι που έκανα και από τη γυναίκα μου. Γρηγορότερη και σταθερότερη κίνηση, όρθιο κορμί κατά τη βάδιση. Τράβηξα βίντεο να ανεβαίνω και να κατεβαίνω σκαλιά, εμφανώς καλύτερα από βίντεο που είχα τραβήξει πριν την επέμβαση. Θα το ανεβάσω εν καιρώ όταν αισθανθώ πιο σίγουρος με τις συνολικότερες καταγραφές και συγκρίσεις που κάνω.

2 εβδμάδες μετά: Ο βαθύς ύπνος συνεχίζεται. Δεν ζαλίζομαι μετά τη θάλασσα κσι όταν κλείνω τα μάτια δεν χάνω ισορροπία. Μικρά σκαμπανεβάσματα υπάρχουν όμως δεν αναιρούν τη γενική βελτίωση.

Άλλα που παρατηρώ: Δεν έχω κανένα σημάδι αλλεργίας (φτάρνισματα κλπ). Γονατίζω πολύ ευκολότερα αλλά και σηκώνομαι πολύ ευκολότερα από γονατιστή στάση. Κινούμαι ανετότερα μέσα στη θάλασσα και στη γυμναστική που κάνω (διατάσεις κλπ). Αυτό που υπάρχει παρόλη τη βελτίωση είναι ακόμα δυσκολία στην κίνηση λόγω σπαστικότητας και αισθήματος βάρους ενώ και ανεπαίσθητο μούδιασμα. Μερικές φορές από το απογευματάκι και μετά “πέφτω” κάπως.

Παρενέργειες μετά την επέμβαση: Αμέσως μετά πολύ ελαφρύ αίσθημα “γδαρσίματος” και πολύ μικρού πόνου δεξιά και αριστερά από το λαιμό (περίπου όπως νιώθουμε στα πρόθυρα κρυώματος), πολύ λίγα τσιμπηματάκια στο στήθος και κατά την αναπνοή ή την κατάποση πιο αισθητά. Ελαφριά ζάλη. Όλα εντελώς φυσιολογικά και κράτησαν μερικές μέρες.

Τι κάνω τώρα και για όσο παίρνω τα αντιθρομβωτικά:
Vitamin C: 5 grams ημερησίως (όπως προανέφερα)
Beta Carotene: 25000IU ημερησίως
[b]Magnesium: 500mg ημερησίως
Β100: 1 ημερησίως
Προβιοτικά
Σελήνιο 400mcg
Νιασίνη 150mg 2 φορές την εβδομάδα
MSM(οργανικό Θείο) 3000mg ημερησίως

Β1 – Thiamine: 400mg ενέσιμα ημερησίως
Liver Extract: 1ml δυο φορές την εβδομάδα
Ενίοτε Β12 Evaton ενέσιμη
Αντιπηκτικό: Innohep 1 ημερησίως
Περισσότερα για τις βιταμίνες μου εδώ:
http://www.mymultiplesclerosis.gr/index … stion_vits

Για την αποτοξίνωση από το σίδηρο πίνω διάφορα είδη πράσινου τσαγιού (βιολογικά προϊόντα και ένα φαρμακευτικό σκεύασμα που δεν περιέχει καφεΐνη).

Dr Zamboni’s work: What your doctor should read

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Zamboni P., 2006: The big Idea: Iron-dependent inflammation in venous disease and proposed parallels in multiple sclerosis. Journal of the Royal Society of Medicine, Vol. 99, Nov. 2006, pp. 589-593.

Zamboni P. et al., 2007: Intracranial Venous Haemodynamics in multiple Sclerosis. Current Neurovascular Research, Vol. 4, No. 4, Nov. 2007, pp. 252-258


Menegatti E. and Zamboni P., 2008: Doppler Haemodynamics of cerebral Venous Return. Review Article, Current Neurovascular Research, Vol. 5, No. 4, Nov. 2008, pp. 260-265.

Zamboni P. et al., 2008: Chronic cerebrospinal venous insufficiency in patients with multiple sclerosis. Research paper, Journal of Neurology, Neurosurgery, and Psychiatry, Vol. 80, 2009, pp. 392–399. (originally published online Dec. 5th 2008)


Zamboni P. et al., 2009: The value of cerebral Doppler venous haemodynamics in the assessment of multiple sclerosis, Journal of the Neurological Sciences, Vol. 282, 2009. pp. 21–27

Zamboni P. et al., 2009: Venous Collateral Circulation of the Extracranial Cerebrospinal Outflow Routes. Review Article, Current Neurovascular Research, Vol. 6, No. 3, Aug. 2009, pp. 204-212


Singh and Paolo Zamboni, 2009: Anomalous venous blood flow and iron deposition in multiple sclerosis. Journal of Cerebral Blood Flow & Metabolism, Vol. 29, Sep. 2009, pp. 1867–1878 (Published online 2 September 2009)

Zamboni P. et al., 2009: Rationale and preliminary results of endovascular treatment of multiple sclerosis, the liberation procedure. In “Vascular and Endovascular Controversies Update”, Ed. R.M. Greenhalgh, ISBN: 0-9544687-6-7, pp. 71-79

Zamboni P. et al., 2009: A prospective open-label study of endovascular treatment of chronic cerebrospinal venous insufficiency. Journal of Vascular Surgery, Vol. 50, No 6, Dec. 2009, pp. 1346-1358.

P. Zamboni, E. Menegatti, B. Weinstock-Guttman, C. Schirda, J. L. Cox, A. M Malagoni, D. Hojnacki, C. Kennedy, M. G. Dwyer, N. Bergsland, R. Galeotti, I. Bartolomei, F. Salvi, M. Ramanathan, R. Zivadinov. 2009: The severity of CCSVI in patients with MS is related to altered Cerebrospinal Fluid dynamics. Functional Neurology, Vol. 24, No. 3, pp. 133-138.

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