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Oral MS Drug Gilenya May Carry Serious Side Effects


Article taken from: http://www.healthcentral.com


As many likely already are aware, Gilenya was approved by the FDA for use in the United States back in September 2010.  It is the first–and only–oral disease-modifying drug for multiple sclerosis.  Once thought to be something that would only exist in a futuristic world with flying cars and jet packs, an oral MS drug is a reality.

Unfortunately, it may also carry serious side effects.

Although Gilenya was approved by the FDA, the drug carries a warning that it could slow a patient’s heart beat when they start taking the medication.  The FDA guide indicates that, “your heart rate will usually slow down the most about six hours after you take the first dose,” but also notes that your slow heart rate should return to normal within one month of starting Gilenya.  The FDA also warns to contact a doctor if you experience dizziness, tiredness or a slow or irregular heartbeat.

Before taking the drug, then, it would be wise to inform a doctor of any previous heart problems you may have experienced.

And now the European Medicines Agency (EMA) – the European equivalent of the FDA – is recommending that doctors not prescribe the drug to patients with a history of cardiovascular and cerebrovascular disease or those taking heart-rate lowering medication.  The EMA also recommends that anyone considering taking Gilenya first have a doctor monitor their heart activity prior to starting the drug.  Their heart rate should also be closely watched immediately after taking the drug for the first time – the aforementioned six-hour window.

The Committee for Medicinal Products for Human Use – the division of the EMA that issued the new recommendations – closely examined 15 incidents of sudden or unexplained deaths in patients who took Gilenya.  The majority of these deaths were cardiovascular in nature but were not necessarily directly tied to the drug.

The bottom line is that Gilenya can be very beneficial to patients with multiple sclerosis, but its use needs to be closely monitored by a doctor.  Patients should have a heart monitor test before taking the drug and patients with a history of heart problems should avoid the Gilenya.


Rattue, Petra.  (27 April 2012).  Gilenya Heart Side Effects – European Medicine Agency Gives New Recommendations.  Medical News Today.  Retrieved from http://www.medicalnewstoday.com/articles/244719.php

Multiple Sclerosis Stories

Multiple Sclerosis Stories


Multiple Sclerosis Stories – Susanne's Testimonial

In 2007 I felt for the first time really consciously, that my fingertips were numb and it did not go away. But I thought I have a nerv pinched or something of that sort . I mean I had symptoms much earlier then that. Looking back now, already in 2003 I had a real flare up with double pictures, dizziness, but it went away after a few days, so I was not too concerned. I travelled a lot professionally and so I was too busy to pay any attention to these early symptoms of MS. Then in 2010 after I had quite some dental work done , I was often very tired, it became hard at times to hold a plate and my right leg became lame and my ability to walk declined rapidly. After a lot of misdiagnosis I got an MRI and it was clear – I have MS. ( I spare you that part of the story. If you read this, you know this part, I am sure, you had similar experiences. ) It was quite a shock, but a relieve as well, because suddenly it made sense, where these symptomes came from. The mylinsheet around the nerves was damaged. My doctor, who is wonderful told me in all her years, she knows only one thing, which she has seen reverts MS – The megavitamin protocol, with injectable B1 and liver extract from the late Dr Klenner. I had quite some good experiences with vitamins in the past and after some research in the illness and the available treatments, it was clear to me : The only thing I would ever do for my body, to help him heal the damage, was this program. I started and received quite some unexpected help from a wonderful lady, who is doing the program, as well with wonderful results. I had to do more dentalwork right at the beginning, so I can not say I had an easy start, but now after I am on the program for almost a year, I can say with absolute certainty – my body is improving. My right wrist is painfree. Before it was very painful, after only a few minutes of typing on the computer, I was totally exhausted. I was not able to bend my right knee , now I can easily bend it . I have more energy to do basic housework and even I am working from home,I can work again. My walking is improving. It is not fixed yet, but I have certainty I will walk again normally. Healing is never fast. Specially the nerves. But to give the body the missing vitamins to heal the damages is wonderful and it feels great. I can just give you one advice – do not wait a minute longer. If you know you have MS. If the damage is not very advanced, it is easier to handle.

If you have questions, feel free to send me an e mail. dignus4@gmail.com


A “Unique” Additive free Vitamin E

After our last newsletter concerning additive free vitamins we are ready to suggest you an excellent Vitamin E with mixed tocopheryls called “Unique E”. 100% additive free of course.
This all-natural, pure mixed-tocopherol concentrate consists of a proprietary mixture of the four tocopherols (alpha, beta, gamma, and delta) as obtained from plant-source oils.  It is totally devoid of fillers, allergens, colorants, additives, soy protein, wheat or gluten.  This concentrated formula provides all the benefits of the complete spectrum of the four tocopherols typically found in food.  Each capsule contains a consistent amount of the four tocopherol molecules.  Recent research has shown that gamma and delta tocopherol have other functions that are unique and different from alpha-tocopherol.  Thus, current scientific literature would suggest that the consumption of a significant amount of all four Vitamin E isomers is of greater benefit than simply consuming alpha-tocopherol.

Too much alpha tocopherol impairs benefits of gamma tocopherol

And it is important that you don’t get too much alpha tocopherol relative to the amount of gamma tocopherol…

It is well documented that plasma and tissue gamma tocopherol are suppressed by alpha tocopherol supplementation 1. In sharp contrast, gamma tocopherol supplementation leads to a win-win situation, increasing both alpha and gamma tocopherols.2

What is gamma tocopherol?

Gamma tocopherol is one of several vitamin E compounds. It is usually the most prevalent form of vitamin E in plant seeds and in products derived from them, including vegetable oils such as corn, soybean and sesame. Also nuts such as walnuts, pecans and peanuts are rich sources of gamma tocopherol.

Recent studies indicate that gamma tocopherol is extremely important to human health and that it possesses unique features that distinguish it from alpha tocopherol,3 it has finally moved into the spotlight.

Gamma tocopherol is a better protectant against inflammatory diseases

Although alpha tocopherol has been shown to be a better antioxidant than gamma tocopherol, gamma tocopherol is a better anti-inflammatory. It is very good at controlling chronic inflammation-related diseases including arthritis, cancer, cardiovascular disease, and neurodegenerative disorders3 such as Alzheimer’s disease.4

Alpha tocopherol is definitely good for you. It is a stronger antioxidant than any of the other tocopherols. But gamma tocopherol provides potent benefits that alpha tocopherol does not. And there is research showing that a combination of gamma tocopherol plus alpha tocopherol gives synergistic benefits in the protection against cardiovascular disease, cancer and many other diseases.


1. Handelman GJ, Epstein WL, Peerson J, Spiegelman D, Machlin LJ, Dratz EA. Human adipose -tocopherol and -tocopherol kinetics during and after 1 y of -tocopherol supplementation. Am J Clin Nutr 1994;59:1025-32

2. Clement M, Bourre JM. Graded dietary levels of RRR-gamma-tocopherol induce a marked increase in the concentrations of alpha- and gamma-tocopherol in nervous tissues, heart, liver and muscle of vitamin-E-deficient rats. Biochem Biophys Acta 1997;1334:173-81.
3. Qing Jiang, Stephan Christen, Mark K Shigenaga and Bruce N Ames. Gamma Tocopherol, the major form of vitamin E in the US diet, deserves more attention, American Journal of Clinical Nutrition, Vol. 74, No. 6, 714-722, December 200
4. Handelman GJ, Epstein WL, Peerson J, Spiegelman D, Machlin LJ, Dratz EA. Human adipose -tocopherol and -tocopherol kinetics during and after 1 y of -tocopherol supplementation. Am J Clin Nutr 1994;59:1025-32
  • http://www.smart-publications.com
  • http://www.acgrace.com

Additive free vitamins for best results in the Klenner therapy


We are constantly trying to find new data and articles to back up this therapy, and to help patients to be able to absorb the important supplements. Most supplements in the market are tablets, capsules and/or soft gels, many of them containing additional “additives” such as magnesium stearate or stearic acid, beeswax, soy products, natural colors or flavors etc. Even though most patients find the vitamins we suggest very helpful, it is always better to try to eliminate unnecessary substances and find the purest form possible, one that is the most absorbable. Tablets and pills always lack a suggested one percent in absorption. There is a lot of discussion throughout the internet regarding the safety of these substances, or the possible harm that they may do taken on a daily basis and for long periods of time.

Since the original protocol was written, the vitamins that were available at that time have become much more widely available with many different forms available. With the popularity of taking supplements throughout the world there has been a huge market opened in selling supplements, and many new strengths, purities and chemical or “pure” forms have become available.

At the time that Dr. Klenner was prescribing vitamins, a limited number were available to choose from, and many were extremely expensive. It was very difficult to find anything that was “better quality” combined with low prices. With the exploding markets of sales of supplements, there are many types to choose from now, and we always want to make sure we are trying to obtain the best and most absorbable with an eye towards purity to ensure the effectiveness of the therapy. We think that after all these years it is a good time to make some suggestions on the vitamins and supplements on the protocol. Some of those taking the supplements who are having digestive problems or gastrointestinal issues may want to consider some of these suggestions, they are listed as being 100% pure, and some come in liquid forms.

While researching this, two questions arose:
a) Can all of the vitamins be found in pure form?
b) Is it possible to combine both purity and additive free vitamins with affordability?
The first question regarding pure form is definitely yes. We have found something for every vitamin on this website in a “pure form”. Of course if you have any suggestions we are always open to suggestions. Regarding cost, some are going to be more expensive in the long run while others are not.
For now we can suggest alternative vitamins in liquid, powder or other forms all additive free and highly absorbable. Whenever we find something new we will let you know. You can always check this new suggestion in the “Suggestion: Where to buy your oral vitamins” page. We haven’t changed our previous links, we have only added below some vitamins an addition called “Our best quality choice” followed by what we believe covers the above statements.
Stay tuned!
All content posted on this site is commentary or opinion and is protected under Creative Commons Licence. “My Multiple Sclerosis” sells no health or nutritional products and earns no money from health product manufacturers or promoters. It is the long term personal research on MS, based on Dr Fr. Klenner’s protocol and the experience of hundreds of patients. The information on this site is provided for educational purposes only. It is not intended as a substitute for professional advice of any kind. “My Multiple Sclerosis” assumes no responsibility for the use or misuse of this material. Your use of this website indicates your agreement to these terms. All trademarks, registered trademarks and service marks mentioned on this site are the property of their respective owners.

Do you Soak your Nuts and Seeds? Start now and improve your digestion!

People suffering with MS eat nuts. It is a quick and easy snack and they can enrich your protein intake. The problem is that occasional or continious consumption of unsoaked nuts can create or worsen digestion and bowel problems.
Nuts and seeds have enzyme inhibitors such as phytic acid, that can put a strain on your digestive system. The reason these enzyme inhibitors are there in the first place is to make sure the nuts and seeds don’t prematurely sprout. Makes sense. They need to be in the right environment for their life giving properties to be activated. The plus for you? Soaking not only releases the enzyme inhibitors, it starts the germination process which releases the good enzymes and nutrients! If you soak your nuts, they are much easier to digest and their nutrients are easier to assimilate. With a little advanced effort, you can unlock the all of the wonderful gifts nuts an seeds have to offer.
So the benefits of soaking nuts and seeds are:
  • Enzyme inhibitors get neutralized.
  • The amount of vitamins your body can absorb increases.
  • Gluten breaks down so digestion is much easier.
  • Phytic acid, which inhibits the absorption of vital minerals, is reduced.

You don’t have to follow these strictly unless you want to go deeper into the soaking issue).

Soak your nuts and seeds anywhere from 20 minutes, to 2 to 3 hours, even overnight at room temperatures. In general, harder nuts will take longer to soften. If your recipe calls for soaked nuts or seeds and you are low on time, try to squeeze in 20 minutes or just do a really good job rinsing them. Otherwise, plan ahead a bit and soak them overnight in your refrigerator in a glass container with an airtight lid. Soaking nuts in plastic is generally not recommended as plastic can leach into the water and into your food.

The procedure: Soaking Nuts and Seeds

  1. Gather your raw, organic nuts or seeds.
  2. Rinse them in purified or distilled water.
  3. Place them in a glass or stainless steel bowl.
  4. Cover with twice as much water as the nuts or seeds. (1 cup of nuts to 2 cups of water).
  5. Cover the bowl with something breathable like a cloth towel.
  6. Drain and rinse the nuts or seeds every 3 or 4 hours.

The soak water will contain the enzyme inhibitors which is very acidic to the body so make sure to rinse your nuts and seeds well.

There are numerous recipes and things you can do with Soaked Nuts. One book I recommend is this.

Soaked nuts can be eaten within 2 days right after soaking and should be refrigerated. You can enjoy them plain or prepare dressings for salads or in other delicious recipes.

She the “Parmezan recipe from cashews and “

Nut / Seed Dry Amount Soak Time
Alfalfa Seed 3 Tbsp 12 Hours
Almonds 3 Cups 8-12 Hours
Amaranth 1 Cup 3-5 Hours
Barley, Hulless 1 Cup 6 Hours
Broccoli Seed 2 Tbsp 8 Hours
Cabbage Seed 1 Tbsp 4-6 Hours
Cashews 3 Cups 2-3 Hours
Clover 3 Tbsp 5 Hours
Fenugreek 4 Tbsp 6 Hours
Flax Seeds 1 Cup 6 Hours
Garbanzo Beans
(Chick Pea)
1 Cup 12-48 Hours
Kale Seed 4 Tbsp 4-6 Hours
Lentil 3/4 Cup 8 Hours
Millet 1 Cup 5 Hours
Mung Beans 1/3 Cup 8 Hours
Mustard Seed 3 Tbsp 5 Hours
Oats, Hulled 1 Cup 8 Hours
Onion Seed 1 Tbsp 4-6 Hours
Pea 1 Cup 8 Hours
Pinto Bean 1 Cup 12 Hours
Pumpkin 1 Cup 6 Hours
Quinoa 1 Cup 3-4 Hours
Radish 3 Tbsp 6 Hours
Rye 1 Cup 6-8 Hours
Sesame Seed,
1 Cup 8 Hours
Sesame Seed,
1 Cup 4-6 Hours
Spelt 1 Cup 6 Hours
Sunflower, Hulled 1 Cup 6-8 Hours
Teff 1 Cup 3-4 Hours
Walnuts 3 Cups 4 Hours
Wild Rice 1 Cup 12 Hours

Sources: http://www.rawmazing.com

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