Posts tagged Protocol Testimonials

Multiple Sclerosis Stories

Multiple Sclerosis Stories


Multiple Sclerosis Stories – Susanne's Testimonial

In 2007 I felt for the first time really consciously, that my fingertips were numb and it did not go away. But I thought I have a nerv pinched or something of that sort . I mean I had symptoms much earlier then that. Looking back now, already in 2003 I had a real flare up with double pictures, dizziness, but it went away after a few days, so I was not too concerned. I travelled a lot professionally and More >

Multiple Sclerosis Stories


My first experience with MS started when I was 7. I had intermittent blurry vision but no one knew what was causing it. As the years went by and the symptoms would show up I had many misdiagnoses, including Bell’s palsy, arthritis, pinched nerves, etc. Finally, at the age of 35, I went numb from the waist down and I was referred to a neurologist for the first time in my life. He knew it was MS right away, but we had to do all the tests, including MRIs, a spinal tap and a battery of blood tests. That confirmed More >


As I have not submitted to a spinal tap, I do not have absolute diagnosis that my condition is MS, but all arrows point to it. My daughter was positively diagnosed with it, which increases my chances of having it exponentially. A spinal tap laid my daughter up for 2-3 months; it would do the same to me, I’m certain.

When my daughter was positively diagnosed with MS, we talked at length about her symptoms and mine. I had some tests run; all arrows pointed to MS but without the spinal tap it’s still not 100%. But the symptoms are More >


MS begun in 1988, when I was in my third year in college. I would get this awful pain across my left foot toes, like a big knife was cutting. I got a cane the same week. After that I visited various doctors in Toronto until one said: “It’s multiple sclerosis”. I cried but I had no idea what it was.

I wanted to get pregnant and my gynaecologist said that there would be no problem. I had a wonderful pregnancy when I had lots of energy. Signs of MS came back when my baby was 15 months and I More >

Anonymous 3

Hello everyone,

just wanted to give my quick report on being on the protocol for the past seven months.

Brief personal story, I am 35 years old, first diagnosed with MS in 1998, a slight numbness in left leg being the first symptom (as it proved afterwards, had had also a short episode of double-sight five years before that). Have had slow but steady decline since that time (with the exception of one strong attack back in 2003 however), symptoms apparent on loss of mobility in legs, along with spasticity, later on dreaded fatique also came on. As most patients, More >

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